NATIONAL REGISTRY SYSTEM FOR HOME MECHANICAL VENTILATION SUPPORT IN CHILDREN: FIRST DATA FROM TURKEY
Bildiriler > Özet Bildiri
Yazarlar: Neval Metin Cakar, Merve Selçuk, Azer Kılıc Başkan, Fusun Ünal, Gökcen Ünal, Birce Sunman, Hüseyin Arslan, Yeliz Koc, Zeynep Efsan Baser, Harun Mamaç, Sinem Can Oksay, Raziye Atan, Bahar Girgin Dindar, Secahattin Bayav, Suat Savas, Merve Korkmaz, Ebru Kostereli, Hakan Yazgan, Ali Ozdemir, Erdem Basaran, Gökçen Kartal Özturk, Ali Ersoy, Beste Özsezen, Aysen Basaran, Özlem Keskin, Tugba Ramaslı Gursoy, Mina Hizal, Gizem Özcan, Almala Pinar Ergenekon, Ayse Ayzit Kilinc, Fazilet Karakoc, Bulent Karadag, Haluk Cokugras, Sevgi Pekcan, Tuğba Sismanlar Eyuboglu, Ayse Tana Aslan, Saniye Girit, Figen GÜLEN, Nazan Cobanoglu, Velat Sen, Yakup Canitez, Zeynep Seda Uyan, Erkan Cakır, Nilay Bas İkizoglu, Melih Hangul, Güzin Cinel, Nagehan Emiralioğlu, Ela Erdem Eralp, Sedat Öktem, Yasemin Gökdemir
Paediatric respiratory physiology and sleep, , , Uluslararası, Özet Bildiri, ss OA4656-OA4656
DOI: 10.1183/13993003.congress-2024.oa4656
Özet
Background: Neonatal and pediatric intensive care advances have enhanced patient survival rates, necessitating respiratory support for chronic respiratory failure cases. The Turkish National Pediatric Patients Receiving Home Mechanical Ventilation (HMV) Support Registration System was established in 2023. This study presents the registry's initial findings. Methods: In this cross-sectional study, the data was obtained from the registry and compared between invasive ventilation (IV) and non-invasive ventilation (NIV) groups. Results: The study included 952 patients registered from 23 centers with a mean (±SD) age of 7.3 (±5.1) years. IV support was observed in 51.1% of patients. There was a significant difference in age, nutrition, mobility status and education were observed between the subgroups. The largest patient group had neuromuscular disease, with spinal muscular atrophy being the most common primary diagnosis (15.7%). Most of the caregivers (78.7% in the NIV group and 93.8% in the IV group) received formal training before the initiation of HMV. Conclusion: Turkey's first registry for pediatric HMV patients has been introduced to address mobility and education issues for these patients in the country. While most caregivers have received training before discharge, further efforts are needed to ensure a 100% training rate.