Pesg PNH diagnosis, follow-up and treatment guidelines
Makaleler > Derleme · 2016
Yazarlar: Fahri ŞAHİN, Olga Meltem Akay, Mesut Ayer, Mehmet Sinan Dal, Sehmus Ertop, OSMAN İLHAN, Volkan Karakus, MEHMET ALİ ÖZCAN, VİLDAN ÖZKOCAMAN, GÜNER HAYRİ ÖZSAN, Ozan Salim, Mahmut TÖBÜ, Anil Tombak, Tulin Firatli Tuglular, Mehmet Yilmaz, Ali Unal, Mustafa Nuri Yenerel, Güray SAYDAM
AMERICAN JOURNAL OF BLOOD RESEARCH, SCI Expanded İndekslerine Giren Dergi, Uluslararası, 2016, cilt 6, ss 19-27
Özet
PNH Education and Study Group ( PESG) have been established in December 2013 as a non-profit, independent, medical organization www.pesg.org. Paroxysmal Nocturnal Hemoglobinuria ( PNH) is a multi-systemic disease that should be treated with a multidisciplinary approach. Patients may apply to the clinics other than the hematology due to variability and diversity of clinical findings which lower the rate of diagnosis due to low awareness about PNH. PNH might be overlooked and diagnosis might be delayed. Regarding these, PESG was established with the collaboration of Immunology, Cardiology, Thorax Diseases ( Pulmonology), Neurology, Gastroenterology, General Surgery and Urology specialists in addition to hematologists dealing with PNH. The PESG study group aims to increase the awareness about PNH, including training activities about PNH, strengthening the relations between clinics and planning of clinical studies as a goal. It is the first professional organization focusing on PNH, in Turkey. In this guideline, we want to facilitate the diagnosis attributes of physicians from all specializations that deal with PNH and its systemic complications. One can perceive this as a tailor made guideline of international guidelines but not a compilation.