Clinical management, psychosocial characteristics, and quality of life in patients with homozygous familial hypercholesterolemia undergoing LDL-apheresis in Turkey: Results of a nationwide survey (A-HIT1 registry)
Makaleler > Tam Makale · 2019
Yazarlar: Latife Meral KAYIKÇIOĞLU, Özlem KUMAN TUNÇEL, Şebnem PIRILDAR, M Yílmaz, L Kaynar, M Aktan, RB Durmuş, C Gökçe, A Temizhan, OI Özcebe, TK Akyol, H Okutan, S Sağ, Gul Oz, Z Salcioglu, M Yenercag, BB Altunkeser, I Kuku, HY Yasar, E Kurtoğlu, M Demir, S Demircioğlu, Z Pekkolay, O Ílhan, L Tokgozoglu
JOURNAL OF CLINICAL LIPIDOLOGY, SCI Expanded İndekslerine Giren Dergi, Uluslararası, 2019, cilt 13, ss 455-467
DOI: 10.1016/j.jacl.2019.02.001
Özet
BACKGROUND: Homozygous familial hypercholesterolemia (HoFH) is a rare, life-threatening inherited disease leading to early-onset atherosclerosis and associated morbidity. Because of its rarity, longitudinal data on the management of HoFH in the real world are lacking, particularly on the impact the condition has on quality of life (QoL), including the impact of the extracorporeal lipid removal procedure apheresis (LA).