The effect of web-based education on disease activity, symptom management, and quality of life on patients with inflammatory bowel disease
Bildiriler > Tam Metin Bildiri · 2018
Yazarlar: BERNA NİLGÜN ÖZGÜRSOY URAN, Yasemin YILDIRIM, FİSUN ŞENUZUN AYKAR, BELKIS ÜNSAL
13th Congress of ECCO (Journal of Crohn’s and Colitis), Avusturya, Uluslararası, Poster, Tam Metin Bildiri, 2018-2018, cilt 12, ss S582-S582
DOI: 10.1093/ecco-jcc/jjx180.1045
Özet
In this study, it is aimed to determine the effect of web-based education on disease activity, symptom management and quality of life (QOL) in inflammatory bowel diseases (IBD). The study which is randomised controlled trial conducted in a gastroenterology clinic of an training and research hospital in Turkey. The sample of the study consisted of 60 patients who were determined by simple stratified randomisation method, 30 patients in the web-based training group and 30 patients in the standard training group. Data were collected using the Patient Identification Form, the IBD Activity Index, the IBD Symptom Check List and the IBD QOL Scale. Information about the disease, such as the definition, anatomy, symptoms, treatment and nutritional management of the disease is presented through the website or educational books. All data collection forms were completed in eight weeks. The first assessment was conducted face-to-face with the patients in the web-based training group, and the next evaluations were conducted on the second, fourth and eighth week through the website. In the standard training program, all the evaluations were made by face-to-face interview method. Ethical permits have been taken to implement the work. At the beginning, it was determined that the patients who were mostly in the mild illness period entered into the remission mostly at the later measurement times, but there was no significant difference in the disease activities according to the measurement times. When the severity averages of gastrointestinal symptoms of patients were examined; abdominal pain symptom in the web-based training group and symptoms of diarrhoea, stool mucus and abdominal pain in the standard training group were significantly reduced. It has been determined that there is no difference between the web-based and standard training groups in terms of the time-average of severity of diarrhoea, abdominal pain, stool blood, mucus in the stool and tenesmus. In the process up to the end of the study, it was seen that the QOL scores of the web-based and standard training groups were similar, there was no significant difference in-group and between the groups, but in time there was an improvement in the QOL of the patients. There was no significant difference between web-based and standard training, and both groups showed improvement in severity of symptoms, disease activity and QOL. The web-based IBD training program is not different from standard training in terms of affecting disease activity, symptom management and QOL, no matter which method, it has been concluded that according to needs of the patients the structured and individualised patient education programs are effective and important.